It has been 2 days since we found out that there is something seriously wrong with our baby daughter. I’m fighting every day to keep going for the sake of my boys. My husband is truly my rock. I could not do any of this without his support.
It is difficult to concentrate at work. It is difficult to hold back tears throughout the day. By the evening, I’m crying because I just cannot hold back any longer. I cannot explain to my 12 year old son what is going on. He has such high anxiety. I cannot add this stress to him.
I constantly Google our daughter’s condition. I begin second guessing myself. Was it pulmonary atresia or agnesis? Is it treatology of fallot with pulmonary atresia? Why didn’t I write this down? It looks like our daughter has what Jimmy Kimmel’s son was born with. I’m not sure if that gives me hope or more despair.
Want to ruin your day? Look at pictures of newborn children who have just had open heart surgery. This is not going to be easy. We have 4 more months to worry.
To top off the stress of this week, our youngest son now has a scheduled surgery date for his cochlear implants. It is scheduled for February 13th. This outpatient surgery will be his 6th surgery since he was born. The cochlear implant surgery will lead to a long road of recovery and therapy.
It is one thing after another. I’m trying to stay strong, stay focused, and stay calm.
Always something with the Uhlirs 